I am the caretaker for my mother, who has lived with me for about 20 months, and been diagnosed with ALS for about 3 years. Since January she has been on hospice, and as of this past week-end she has been on critical care, and we have had a nurse in our home for the past 24 hours. They feel the end is near, and so I won't be working on anything for awhile, but hope to catch up sometime.
Hospice has been wonderful, and they make a hard time much easier for all concerned. They are keeping her sedated and as comfortable as possible.